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A resolution designating February 27, 2025, as "Rare Disease Day".
3/6/2025, 7:50 PM
Summary of Bill SRES 104
Bill 119 SRES 104, also known as the "Rare Disease Day" resolution, aims to designate February 27, 2025, as a day to raise awareness about rare diseases. The resolution highlights the challenges faced by individuals living with rare diseases and emphasizes the need for increased research, treatment options, and support for those affected.
Rare diseases are defined as conditions that affect a small percentage of the population, often with limited treatment options and resources available. This resolution seeks to bring attention to the struggles faced by individuals with rare diseases and their families, as well as the importance of continued efforts to improve their quality of life.
By designating February 27, 2025, as "Rare Disease Day," this resolution aims to promote education and awareness about rare diseases among the general public, healthcare professionals, and policymakers. It also encourages the development of innovative solutions and policies to address the unique needs of individuals with rare diseases. Overall, Bill 119 SRES 104 serves as a reminder of the importance of supporting individuals with rare diseases and working towards a future where all individuals have access to quality care and treatment options, regardless of the rarity of their condition.
Rare diseases are defined as conditions that affect a small percentage of the population, often with limited treatment options and resources available. This resolution seeks to bring attention to the struggles faced by individuals with rare diseases and their families, as well as the importance of continued efforts to improve their quality of life.
By designating February 27, 2025, as "Rare Disease Day," this resolution aims to promote education and awareness about rare diseases among the general public, healthcare professionals, and policymakers. It also encourages the development of innovative solutions and policies to address the unique needs of individuals with rare diseases. Overall, Bill 119 SRES 104 serves as a reminder of the importance of supporting individuals with rare diseases and working towards a future where all individuals have access to quality care and treatment options, regardless of the rarity of their condition.
Read the Full Bill
Current Status of Bill SRES 104
Bill SRES 104 is currently in the status of Bill Introduced since February 27, 2025. Bill SRES 104 was introduced during Congress 119 and was introduced to the Senate on February 27, 2025. Bill SRES 104's most recent activity was Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S1434; text: CR S1433) as of February 27, 2025
Bipartisan Support of Bill SRES 104
Total Number of Sponsors
2Democrat Sponsors
0Republican Sponsors
2Unaffiliated Sponsors
0Total Number of Cosponsors
6Democrat Cosponsors
3Republican Cosponsors
3Unaffiliated Cosponsors
0Policy Area and Potential Impact of Bill SRES 104
Primary Policy Focus
HealthAlternate Title(s) of Bill SRES 104
A resolution designating February 27, 2025, as "Rare Disease Day".
A resolution designating February 27, 2025, as "Rare Disease Day".
Comments
Wrenlee Singleton
30,846
11 months ago
I can't believe this bill is actually happening. It's like, why are we wasting time and resources on this when there are so many other important issues to address? I mean, sure, rare diseases are a thing, but come on, do we really need a whole day dedicated to them? It just seems like a pointless gesture that won't actually make a difference in anyone's lives. This is just another example of politicians prioritizing feel-good measures over real solutions. It's frustrating to see our government focusing on this instead of tackling more pressing issues. In the big picture, this bill may seem insignificant, but it's indicative of a larger problem in our political system. We need to start prioritizing legislation that will have a real impact on people's lives, rather than wasting time on symbolic gestures.
Sponsors and Cosponsors of SRES 104
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